Doug's Battle for Health


Life's too good to leave it unfinished!


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June 2007
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Gotta Tri

"Live as if you were to die tomorrow,
learn as if you were to live forever."

Mahatma Gandhi
"We look forward to the time when the power of love will replace the love of power. Then will our world know the blessings of peace."
William Gladstone

Home » Archives » June 2007 » The Human Pin Cushion

[Previous entry: "Tied to the Umbilical Cord"] [Next entry: "Self-Inflicted Chemo"]

06/28/2007: "The Human Pin Cushion"


I had an appointment with my oncologist today. Dr. Tracy and her nurse went over the process of me starting the oral form of 5FU called Xeloda. Fluorouracil, or 5FU is the most common chemo drug for colon cancer and is also used for breast cancer and others. This was the drug that I had to be literally connected to for three days, as I carried and slept with an IV bag and a slow battery operated pump that pushed the drug into the port in my chest. I blamed this one for many of the side effects and drop in my immune system. Xeloda promises to be easier on me and this doctor seems more flexible in decreasing dosage or taking a break if my body has trouble. The one side effect that seems to be a big concern is hand and foot syndrone where your palms and feet get red and cracked. I will be using a prescription cream three times a day for prevention and healing. Lets hope that is the worst of it.

Today, before my appointment, I had blood work done as usualy, so I was talking with my friendly phlebotomist nurse (not lobotomist) about how often I have been poked and how I never seem to get used to it. She has been on the other end for 20+ years and doesn’t see how you could. She shared a few stories of people who had fainted or struck out at her. Made me feel better.

I came home from my last hospital stay with a blood clot so I am on the blood thinner, Lovenox. Unfortunately, I have to inject myself with it twice a day. It is supposed to go into the fatty part of the stomach (where you can pinch and inch). But, with 25 lbs missing, I can’t seem to manage much more than a flab of skin. Its one thing to turn your head and let someone else stick you. Its another to do it yourself. You don’t get to close your eyes and pretend you are somewhere else.

Friday, I meet with my neurosurgeon in a follow-up appointment. Looks like the incisions are healing well and the neck is feeling pretty good for two and a half weeks out. I even drove my car yesterday. The doctor’s pride will be hurt by the fact that I still have very little voice. Seems he nicked the vocal cord nerve. Not sure how long that will take to heal. And though he did slit my throat, this will be an appointment that doesn’t require a needle.


Replies: 5 Comments

on Sunday, July 1st, chris said

Doug,
I am glad you are home and am sending you and your family my best from NYC. Maybe not having a voice is a good thing - you could get a little bell to ring when you need peoples attention!

on Saturday, June 30th, Kelly said

Hey, I'm with Ingrid and Woody ... you could easily get some kind of donation going from those of us with extra inches just yearning to put them to good use ... finally! Keep in touch with your progress with chemo. I like Dr. Tracy. She sounds like what you need. Hopefully, this round will be easier on you than the last. We've got all our energy going in that direction.

on Friday, June 29th, Ingrid and Woody said

Doug - I was supposed to inject Ingrid with a blood thinner when she racked up her knee skiing. I started fainting at the mere thought... She did it herself, and I hastily left the room when she did.
By the way, I can lend you a bunch of inches to pinch. Let me know where to send them!
Woody

on Friday, June 29th, Christina Sweet said

Rock when I 1st started taking insulin they taught me to throw the needle like a dart. The trick for me was to let it go the first time I must have stabbed myself a dozen times. Sometime after I started injecting they changed my syringe from Ultra Fine to Micro Fine. The Micro Fine though thinner hurt a lot and sometime would bleed and insulin would also come out as I withdrew the needle. I changed back to the Ultra Fine. The point of this story is maybe your Dr can give you a needle size that might be better suited for self injection. Believed or not you will get use to injecting yourself.

satisfied

on Thursday, June 28th, Mia said

I hope this round of chemo is much easier than the last. Even with an inch to pinch on my tummy, I'd have to have Jason give me the shot! Although he is worse with needles than I am. On the bright side we don't have to worry that we'll ever turn into IV drug users! Pill poppers maybe razz


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