Doug's Battle for Health


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"Live as if you were to die tomorrow,
learn as if you were to live forever."

Mahatma Gandhi
"We look forward to the time when the power of love will replace the love of power. Then will our world know the blessings of peace."
William Gladstone

Home » Archives » June 2006 » Spinal Metastases

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06/05/2006: "Spinal Metastases"


From my reading it is apparent that the backbone is a common site for cancers to spread. Metastases is the spreading of cancer from its original location to other organs in the body. Seventy percent of all cancer patients develop metastatic disease and of those, 40% are located in the spine.

The results of this last scan did show some positives as the cancer has not spread other places and the multitude of lung nodules, though still present, are not growing. My focus now is to see what we can do about this tumor in my 7th vertebrae. There are a couple of options.

I could go back on chemotherapy (probably my doctor’s recommendation), I could have radiation (yet to explore side effects) or I could opt for surgery. At this point, I am not interested in returning to chemo. I was reading in a book this weekend that certain drugs in your chemo-cocktail can so deplete your immune system that it actually allows the cancer to spread. That was an eye opener. Especially since one of the drugs mentioned is one that has been present in both treatment sessions. I even carried this one around for three days every two weeks while it slowly pumped into me.

I have been concerned as to why, after showing no tumors going into treatment, two months after treatment, it had spread to my lungs and spine. The doctor’s explanation was that it might have spread faster without chemo. I got very sick during that first round, ending up in the hospital for severe dehydration and a blood infection. The latter required me to self administer IV antibiotics three times a day for two months. Think my immune system may have been compromised?

So chemo is out and I am now looking at Radiation and Surgery. Surgery can leave me paralyzed so that too, does not look attractive. I am not excited about the potential of radiation as it can be quite damaging. Also, colon cancer is considered a radioresistant tumor. So it does not react well to radiation.

I did find a new technique that sounds interesting - stereotactic radiosurgery (SRS). This is a precise laser radiation treatment can avoid the spinal column and works with radioresistant tumor. There is a new device called CyberKnife (http://www.accuray.com) that was created here in Sunnyvale. The treatment requires one to three outpatient visits and the patient does not experience pain. This new high-tech device maximizes pin-pint radiation to the tumor and avoids surrounding healthy tissue.


Replies: 6 Comments

on Friday, June 9th, LindaU said

Did you find the CyberKnife support page? If not: http://www.cyberknifesupport.org/ Looks good.

on Tuesday, June 6th, Dawn Shaw said

Hi Rock,

Just wanted you to know that our family is with you all the way. We are praying for you and we love you a lot!!

Dawn for all the Shaw's

on Tuesday, June 6th, Anne Bubnic said

Doug

The good news is that Cyberknife radiosurgery is being done at Stanford (Steven D. Chang, MD, Assistant Professor of Neurosurgery). You wouldn't even have to go to Mexico for the treatment! For such a pioneering guy like yourself, if there was ever a time to believe in new technologies - it's now!

Our prayers are with you for the next line of treatment. We are all inspired by the way you continually take charge of your illness, exhaust all the research and make decisions armed with your new knowledge. Information is power.

on Tuesday, June 6th, Mike Herbst said

Way to Go Rock!!! Finding new technologies that will win the battle for you. Just like the old Doug, always on the technology Frontier.

Mike

on Monday, June 5th, Mia said

I'm heart broken that the scan didn't yield better results. It seems so difficult to choose a course of action with all the conflicting information. But chemo sure does seem to be a horrible prospect. It seems like they try to see how close they can get to killing you without killing you. Of course your immune system is going to be compromised.

Just wanted to let you know I was reading and thinking of you. Much love and healthy wishes.

on Monday, June 5th, Scott Norvell said

Doug,

I have been following your blog since I first heard through the CUE newsletter and have been praying for you and your family. You have been a major influence on me as I have sat in on your presentations at CUE and the Tech Coord. sessions that you and Tim have moderated. One of the great things that I appreciate about you is how you take your vision and zeal for using technology as an educational tool and make it available for the "masses." When I'm working with staff members at my school or in my district, you are the model that I keep in mind.

The CyberKnife treatment sounds very promising and looks like it would relieve the pain. How cool that the technology is available right there for you! How soon could you start treatment?

If you don't mind, I'll have some of my friends keep you on their prayer list. My daughter (11) is a great prayer warrior and will hold you up as well!

- Scott


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